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Myzome in the UK Community Dr Suyash Prasad - Senior Associate Medical Director, Genzyme UK |
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Screening At-Risk Populations and Future Newborn Screening for Pompe Disease (PowerPoint) Dr Alan Cooper, Willink Biochemical Genetics Unit, Royal Manchester Children's Hospital |
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Non-Invasive Ventilatory Care: Pulmonary Rehabilitation |
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National Collaborative Study of LSDs (PowerPoint) Prof. Stuart Logan & Dr Rob Anderson, Peninsular Medical School |
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Physiotherapy and Exercise Laura Case, Physical Therapist, Duke University, North Carolina, USA |
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Speech, Feeding and Swallowing Issues (PowerPoint) Sonia Lozano - Specialist and Speech & Language Therapist, Great Ormond Street Hospital for Children, London |
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Gene Therapy Update: Bedside to Bench and Back Dr Barry Byrne, Powell Gene Center, University of Florida |
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Multidisciplinary Approaches to the Pompe Disease Infant Dr Priya Kishnani - Prof and Chief, Division of Medical Genetics, Dept of Paediatrics, Duke University Medical Centre,North Carolina, USA |
Good Vibrations Update
Experiences of Whole Body Vibration
by Kevin Annesley
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Now you've seen the film, read the blog:
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AGSD UK 2009 Conference Report
Check out the 2009 Conference Report by Luke Fraser.
click here to view
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Influenza vaccinations Advice from the Erasmus Medical Centre, Rotterdam. Read it Here
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AGSD-UK Joins
Navigation This Pompe website is closely linked to the AGSD (UK) website. Where common features exist (Fundraising, Merchandise) you will be passed back to that site's web-pages. |
