Publications

 

Newsletter

The Pompe's Bulletin is produced roughly yearly at the moment. It is sent in hard copy form to all members of the AGSD(UK) with an interest in Pompe's disease, as well as to doctors and scientists worldwide. The Bulletin began in 1994, as a 1 page photocopied sheet. Today it is a 16 page, full colour professional production.

 

Updates

Pompe publish an update to keep health professionals informed of any news or developments.

 

 

 
  

Good Vibrations Update

Experiences of Whole Body Vibration  
by Kevin Annesley

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Now you've seen the film, read the blog:
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 AGSD UK 2009 Conference Report
Check out the 2009 Conference Report by Luke Fraser.
click here to view
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Influenza vaccinations

Advice from the Erasmus Medical Centre, Rotterdam. Read it Here
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AGSD-UK Joins
UK LSD Collaboration
Read more here

Navigation

This Pompe website is closely linked to the AGSD (UK) website. Where common features exist (Fundraising, Merchandise) you will be passed back to that site's web-pages.

 

© Association for Glycogen Storage Disease (UK) 2007