Past Events

 

AGSD (UK) FAMILY CONFERENCE 2007

October 13th 2007

Another well attended family conference with a lot of oportunities for interaction and interesting presentations. Luke Fraser has created a comprehensive report of the Pompe workshop.

Read more...

 

AGSD (UK) FAMILY CONFERENCE 2006

14 OCTOBER 2006 - Bradford

Following a busy and progressive year for Pompe research and treatment, the 2006 AGSD (UK) family conference was held in Bradford on 14 October. Turnout was very good with over twenty-five family members and a similar number of professionals, and the invited speakers included many key players with respect to Pompe. There was a full timetable which made for an informative day and importantly much of the information presented this year was directly relevant to UK Pompe patients and their families.

Read Report



AGSD (UK) FAMILY CONFERENCE 2005

16 OCTOBER 2005 - Milton Keynes

On October the 16th this year we held our annual AGSD (UK) family conference in Milton Keynes. For the Pompe Workshop we had a good number of families present and hopefully I left enough time in and around the programme for them to chat and swap stories amongst themselves. We had the added advantage this year of sufficient sponsorship to allow us to put on a conference dinner the previous evening, adding to the sociability of the event. I would like to thank Genzyme Europe for supporting our 2005 conference so generously.

Read Report


 

 
Pompe boy featured on Granada TV
 
 
Watch it here  
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pb19 cover.jpg
Pompe Bulletin 19
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Good Vibrations Update
Experiences of Whole Body Vibration  
by Kevin Annesley
Read it Here
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Influenza vaccinations
Advice from the Erasmus Medical Centre, Rotterdam. Read it Here
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This Pompe website is closely linked to the AGSD (UK) website. Where common features exist (Fundraising, Merchandise) you will be passed back to that site's web-pages.
 

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