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Future Events

Next conference

The 2008 AGSD (UK) Annual Conference and IPA Meeting

Saturday 27th September 2008

Novotel, Reading

This year we are again combining our family conference with an International Pompe Association (IPA) meeting. The Conference will be held on Saturday 27th October 2008 at the Novotel in Reading. This is because of its easy access from Heathrow airport as we expect a larger number of overseas visitors.

Click here for details

Extraordinary Measures

UK Release date

26th February 2010

But if you can't wait for the film,

read the

REAL POMPE STORY

in Kevin O'Donnell's Blog...just click here

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AGSD UK 2009 Conference Report

Check out the 2009 Conference Report by Luke Fraser.

Just click here to view in a new window

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Influenza vaccinations

Advice from the Erasmus Medical Centre, Rotterdam. Read it Here

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Good Vibrations

Experiences of Whole Body Vibration

by Kevin Annesley

Read it Here

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AGSD-UK Joins

UK LSD Collaboration
Read more here

Navigation

This Pompe website is closely linked to the AGSD (UK) website. Where common features exist (Fundraising, Merchandise) you will be passed back to that site's web-pages.